Advocacy Director’s Report
SUMMER
2008—Work as of
This report represents a summary of the work PAI staff has
reported from
communications
PAI in the Mass
Media
Over this quarter, PAI attorneys and advocates were featured
once on the radio and once on cable television to provide overviews of PAI, and
5 times in
Access to services
· Every year for the last several, the California business community has unsuccessfully sponsored legislation to curb what they describe as “drive-by lawsuits” resulting in damages and high attorney fees for inaccessible premises. Most of the laws they propose call for notification prior to a lawsuit and early in 2008 a couple of those were drafted. Many papers covered the proposed laws, with most space given to the business point of view. On April 3, the North Coast News carried quotes by Margaret Jakobson, PAI advocacy director, and the Consumer Attorneys of California, pointing out there has been plenty of notification, since the access laws are more than 15 years old, and that these proposed notification laws are as predictable as a late budget. (Both these bills died in committee.)
·
On April 11, the Sacramento Business Journal published an in-depth news story about
the bleak outlook for development of a
·
On January 28, the San Luis Obispo News featured a report on the myriad of problems
encountered by a 43 year old man in
Discrimination and equity
·
On April 1, Justice
for All and Ability Magazine
covered the announcement of PAI’s lawsuit against a national day care chain,
Tutor Tots, that provides tutoring services for discriminating against a pupil
with epilepsy. Director of litigation for
· On March 13 the Los Angeles Daily News reported on the increase in special education- related lawsuits in the LA Unified School District, up 25% to a total of 2302 this year. While agreeing that an interesting trend is towards more use of negotiation to avoid the high cost of litigation, associate managing attorney Keith Sakimura pointed out that PAI also placed great emphasis on reaching out to educate parents who are members of underserved minority groups about their rights. The paper presented several points of view but seemed to give more credibility to the school district representative who said they wanted to do the right thing—provide services to children with disabilities—but did not have the funds to do so. (Other recent media coverage of LA schools showed that in excess of $25million has been spent on accessibility with few visible or effective results.)
Overviews of PAI
·
In April, attorneys Keith Sakimura and Fred
Nisen were given the opportunity to explain PAI’s role in the disability rights
movement and highlight its 30th anniversary on LA City Cable Channel
35 and
Press Releases
Using our eNR media management service that we subscribe to through National Disability Rights Network (NDRN), PAI issued a press release each month since January. They received different distribution as indicated:
· On January 23, we announced our Voter Hotline for people with disabilities participating in the February primary. This was distributed to our state lists covering media, government, advocacy and education.
· On February 25, we issued a reminder to advocates and allies to join forces at the March Respectability conference to strategize against the budget cuts. Distributed to all state lists.
·
On March 24, our press release was coordinated
with Senator Sheila Kuehl’s office to jointly announce the bill (SB1515)
calling for elimination of seclusion
and reduction of physical restraint
in
· On April 1, we sent out a press release about our lawsuit against the national day cay center, Tutor Tots, as described above in the In the News section. This was distributed nationwide because the chain being sued is.
Communications: Goals 1, 2, 3
PAI Staff: Barb Duncan, Margaret Johnson, Keith Sakimura, Fred Nisen, Andy Mudryk, Deborah Doctor, Todd Higgins
Grant Funding Source:
Trust Fund
Website Visits this quarter
Visits fluctuated slightly this quarter, starting at 18,220 in January; dipping to 17,475 in February; rising to 17,986 in March and rising again to 18,017 in April. As a comparison, in January 2007, the total visits were 14,382.
Since we began tracking site use through Google analytics in 2007, the main purposes for visits have remained constant: homepage news (around 10,000 visits), publications (ranging from 3000-6000) and jobs (around 3000).
The top two publications across the quarter were: “Special Education - Rights and Responsibilities” getting around 3000-4000 hits a month; and “IHSS Fair Hearing and Self-Assessment Packet” around 500.
Other publications in the top five this quarter were Social Security – Rights and Responsibilities,” the PAI Advocacy Plan, “Restraint and Seclusion in California Schools,” “Filing Claims against Public Entities under the California Tort Claims Act,” and “18 Tips for Getting Quality Special Education Services for Your Child.”
Hot Topics on the
Homepage
Highlights of this quarter were:
· January-February—promoted logo contest, resulting in 123 entries
· February—promoted Respectability, Voter Hotline and PAI Voter Publications
· March—promoted jointly-sponsored legislation on Durable Medical Equipment, black history month, press reports on improvements at Coalinga and Patton hospitals, SEIU request to generate letters about treatment of passengers with disabilities at LAX
· April—publicized various budget protests around the state and announced UN disability rights treaty adoption into force
Communications: Goal 3
PAI Staff: Barbara Duncan, Margaret Johnson and contractors Ruth Ordas and Hizuru Cruz
Grant Funding Source: Trust Fund
LEGISLATIVE ACTIVITIES
Legislative activities are current at the time this report is prepared, however, the legislature moves quickly and things can change overnight, so for the most current information on bills or other activities reported here, check PAI’s legislative website: http://www.pai-ca.org/legislature/index.htm
PAI Sponsored
Legislation moves through the Legislative Process
PAI staff spent a significant amount of time during the quarter working on our three sponsored pieces of legislation, SB 1515 (Kuehl), SB 1198 (Kuehl) and AB 2424 (Beall). All of these bills passed out of their policy committees. For a detailed description of these pieces of legislation, see the Spring 2008 AD Report.
SB 1515, PAI’s bill on the use of seclusion and restraint in educational settings passed out of the senate education committee. Staff worked hard to move the bill. The author’s office and PAI staff held several meetings with many stakeholders and stakeholder groups to address various concerns, such as some educators wanted to continue to use seclusion in some situations and cost issues related to training educational providers. Staff also met with Senate Education Committee staff and members about the bill. PAI staff gathered letters of support for the measure from state, local, and national groups and testified with a parent witness in the Committee. The bill passed out of the Senate Education Committee with all members voting for the bill.
SB 1198,
co-sponsored with the Disability Rights Education and Defense Fund, Inc.
(DREDF) cleared the Senate Health Committee with all of the voting Republicans
joining all the Democrats in support.
Republican committee members questioned the opponents (health care and
insurance company representatives), and rejected their assertions about the
cost of the bill and how it would force employers to drop insurance, thus
harming employees. The senators agreed with the analysis of the California
Health Benefits Review Program (CHBRP), which projected minimal costs to
employers and subscribers, no increase in people requesting
AB 2424,
Co-sponsored with the State Council on Developmental Disabilities, made it out
of the Assembly Human Services Committee with a 4-2 vote. PAI staff met with committee staff and
stakeholders on the bill about costs and workload concerns, drafted letters in
support of the measure, and testified in committee on the legislation.
Public Policy Goals: 1, 2, 3, 6
PAI Staff: Evelyn Abouhassan, Deborah Doctor, Ellen Goldbatt, Leslie Morrison
Grant/Funding
Source(s): Trust Fund, Equal Access
The
Staff advocated heavily in opposition of the proposed cuts in the governor’s January Budget. For a description of the key cuts affecting persons with disabilities, see the Spring 2008 AD Report or visit our website at http://www.pai-ca.org/legislature/budget/2008-2009/index.htm. PAI staff is working with its allies to fight the cuts. Staff attends hearings and testifies in opposition. We draft letters in opposition and use the press as a tool to oppose these measures.
Specific key proposals approved in recent legislative hearings include
· Department of Developmental Services: Expansion and redesign of Family Cost Participation Program, Continuing Past Cost Containment Measures Indefinitely including: Continued Suspension of Funding for Start-up of New Programs, Continued Rate and Service-Level Freezes.
· Medi-Cal: 10 % Provider Rate Cuts.
Other budget proposals that are still under consideration include:
·
Reduction Of $357.9 Million in State Funding for
Special Education
·
The governor’s proposal to cut rates for supported employment services by 10%.
·
Cuts to IHSS,
Elimination of Medi-Cal “optional” benefits, Elimination of SSI/
Office of Client’s Rights Advocacy: Staff advocated against the governor’s
proposal to cut the Office of Client’s Rights by $512,000. Staff met with key legislative and budget
staff in the Senate and the Assembly on the issue. Staff drafted letters and documents in
opposition to the proposal, advocated, and attended budget hearings to testify
in opposition to the cut. The cut will
reduce the number of advocates available to help clients of the regional
centers advocate for such things as special education and IHSS services. The cut was defeated in the Assembly and now
goes to the conference committee.
Public Policy Goals: 3,
4, 5, 6
PAI Staff: Evelyn Abouhassan, Deborah Doctor, Margaret Johnson
Grant/Funding Source(s): Trust Fund, Equal Access
PAI Staff works on
Voting Issues and Voting Rights Legislation
AB 1654: The subject matter of this bill has
changed from being an all mail voting bill to a bill about integrated regional
water planning and no longer has a disability nexus. PAI is neutral on the bill
in its current form.
AB 9: PAI staff continued its advocacy work on this measure, a voter identification bill. Staff wrote letters to policy committee members, lobbied the author and lobbied the Assembly Elections Committee Members with personal visits to their staff. The bill failed in the Assembly Elections Committee. For more details on the bill, see the Spring 2008 AD Report.
Public Policy Goals: 3, 6
PAI Staff: Brandon
Tartaglia, Margaret Johnson, Hillary Sklar
Grant/Funding
Source(s): Trust Fund, Equal Access
Progress on Abuse
Protection Legislation
PAI staff are working on AB 2038 (Lieber), a bill sponsored by the ARC of California to help train police officers to work with people with disabilities. Staff are advocating for the bill and it has moved through Assembly policy and fiscal committees. We are working with the author to fine tune the language of the bill.
Staff focused legislative advocacy efforts this quarter on
AB 1983 (Evans), which will create a care giver registry. Staff advised the REACH Coalition (sponsor), about
the cost factors in the bill and how to minimize the cost of the legislation
given the current state budget deficit. The bill is currently in the Assembly
Appropriations Committee. For a more
information on the bill, see the Spring
2008 AD Report
Public Policy Goals: 3,
4, 5, 6
PAI Staff: Leslie
Morrison, Evelyn Abouhassan, Brandon Tartaglia
Grant/Funding Source(s): Trust Fund, Equal Access
Staff Participates
in Policy Meetings
Staff attended an Olmstead Committee meeting, which included
grim reactions by Committee members to the administration’s proposed cuts to
home and community-based services. Staff has been comparing those cuts to the
increase scheduled for skilled nursing facilities. Staff also attends all
meetings of the Community Choices project and its subcommittee on the financing
of long-term care in
Public Policy Goals: 5, 6
PAI Staff: Deborah Doctor
Grant/Funding
Source(s): Equal Access
Staff Works with
Stakeholders on Community Activities
Capitol Action Day
PAI worked with other advocacy organizations to plan the
annual Disability Capitol Action Day on
RespectAbility
Conference
Staff helped plan the RespectAbility conference, putting together a public hearing on health care and organizing workshops on health care issues and media.
Public Policy Goals: 4, 6
PAI Staff: Brandon
Tartaglia, Deborah Doctor, Margaret Johnson, Barbara Duncan
Grant/Funding
Source(s): Equal Access, Trust Fund
SELF ADVOCACY
ACTIVITIES
DEVELOPMENTAL
DISABILITIES PEER SELF ADVOCACY
DDPSAU Busy Providing Trainings and Outreach to Over 600
People this Winter!
Over the report period staff held 17 trainings and
outreaches on a variety of topics including, Self Advocacy and Rights of People
with Developmental Disabilities, Rights of People Living in Facilities, Peer
Advocacy Leadership Skills, Civic Participation, Voting Rights, Abuse
Prevention, and IPP Rights.
We also gave information about PAI, OCRA and DDPSAU general services to more than 600 people in groups at the
Regional Center of the East Bay, Chico People First, Fairview Developmental
Center, Oakland Activity Center, Pathway to Choices Tenants Group in San
Leandro, Golden Gate Regional Center, The ARC San Francisco, Access to
Community Living in San Leandro, Pathway to Choices in Pinole, The ARC Adult
Day Center in Stockton, The ARC Access program in Stockton, Thumbs Up in
Stockton, Toolworks in Oakland and STEP in Carmichael .
DDPSA Goal: 1, Objective B
PAI Staff: Marinda
Reed, Maria Marquez, Daniel Meadows, and Jackie Coleman
Grant/Funding Source(s): EA/PADD/PAVA
DDPSAU and People First of California Announce Tenth annual
Sandra Jensen Self Advocacy Award Recipient
Staff worked collaboratively with People First
of California to select the tenth annual Sandra Jensen Self Advocacy Award
recipient. This year’s award recipient
is Elizabeth Grigsby who is the Consumer Rights Advocate for the
DDPSA: Goals 1, 2,
Objectives 1, 2
PAI Staff: Marinda
Reed, Maria Marquez and Daniel Meadows
Grant/Funding Source(s): EA/PADD
Peer Self Advocacy
Ongoing efforts to
Overcome Resistance to Self-Advocacy Groups at Patton State Hospital
Peer-Self Advocacy: Goal 1, Objective B (Outreach and Training)
PAI Staff: Garnet Magnus
Grant/Funding Source(s): PAIMI
T.E.A.M House
Self-Advocacy Group Helps Eliminate Stigma and Discrimination
Advocacy group members at T.E.A.M. House in
Peer-Self Advocacy: Goal 1, Objective B
PAI Staff: Garnet Magnus
Grant/Funding Source(s): PAIMI
Voting Rights Trainings
Learning about the voting
process through participation in
Arrangements are currently
underway to provide voting rights trainings to traditionally underserved
communities such as people in rural areas of
In addition, staff is drafting a voter survey for residents of facilities and institutions to learn more about the resident’s knowledge and experiences and what factors affect their decision to vote. With this information, staff will create and customize more effective voting rights training.
Peer-Self Advocacy: Goal 1, Objective B
PAI Staff: Garnet Magnus
Grant/Funding Source(s): PAVA
Focusing on
Veterans and their Families
Staff participated in a Veterans Workgroup with
Peer-Self-Advocacy: Goal 2, Objective 2
PAI Staff: Michael McPherson
Grant/Funding Source(s): PAIMI
Collaborative Efforts
to Address Housing Issues
Both the Corner and Friendship Clubhouses in
Peer-Self-Advocacy: Goal 1, Objectives A & B
PAI Staff: Michael McPherson, Garnet Magnus
Grant/Funding Source(s): PAIMI
Self-Advocacy
Group Members Develop a Plan to Raise Money for Cell Phone Project
In discussing their difficulties with obtaining affordable
housing and jobs, self-advocacy group members at the Wellness Center in Ventura
concluded that one of the main obstacles they face is that potential employers
and property owners or managers have no way of contacting them since they are
homeless and do not have a phone. While
some of them may be reached through the
To overcome this problem, group members decided to create a self advocacy action plan and letter to request donations from various cell phone companies and other businesses so that they could receive a pre-paid cell phone to help them find jobs and places to live. Realizing that it was unrealistic to request unlimited funds for ongoing monthly phone plans, the group decided that the best strategy was to request pre-paid phones, so that potential contributors would be more likely to donate them. In this way, each person would be responsible for deciding how to use their limited phone time, without the need to be monitored by staff or phone companies. At this time, the group has received one response from a company that has expressed interest in participating in their Cell Phone Project.
Peer-Self Advocacy: Goal 1, Objectives A&B
PAI Staff: Robyn Gantsweg
Grant/Funding Source(s): PAIMI
Preparations Begin
for Second Annual
Following up on the success of last year’s conference “Quitándonos La Mascara” (“Taking Our Masks Off”), the Woodlake Women’s Association, Asociación de Mujeres Unidas de Coalinga and the Asociación de Mujeres Unidas de Huron are planning the 2nd Annual Mental Health Conference for June or July. The theme this year is tentatively titled “No Estás Sola” (“You Are Not Alone”) and it will focus on mental health resources and rights workshops and activities.
The self-advocacy groups have been active in collaborating
with local organizations, such as Poder Popular that
works to achieve optimal and complete health for agricultural workers, their
families and communities; Proteus, a
non-profit, community-based organization that provides employment, training,
education, and community service; Women and Girls - Advocacy Coalition of
Tulare County an organization that engages women of all ages in leadership
opportunities to promote social and personal change. Through these collaborations many self-advocacy
group members are mentoring teenage girls who have been abused and neglected
and helping them learn about their rights and gain self advocacy skills
Peer-Self Advocacy: Goal 1, Objective B and Goal 2, Objective B
PAI Staff: David Solis
Grant/Funding Source(s): PAIMI
Self-Advocacy
Group Members Experience More Stigma and Discrimination in the City of
Self-Advocacy group members of La Hora del Café, many of
whom are homeless, are being adversely affected by a new law. The law says people can not stay more than 15
minutes in any one spot within a 50 block radius of downtown LA. People who break this law can be jailed,
fined, or both. Self-advocacy group
members attended a meeting with LA County Commission of Human Rights to speak
out about the law. They also participated
in a meeting with the Network Against Hate and Crime. This is the first time that group members
have actively spoke up about their concerns and advocated for change. Group members are also meeting with students
from the
Peer-Self Advocacy: Goal 1 Objective B
PAI Staff: Senobia Pichardo
Grant/Funding Source(s): PAIMI
Seven on-going self advocacy groups are up and running in Sonoma County, at Interlink; two at the Wellness and Advocacy Center; at Brown Street Board and Care; at The Fact Group, a forensic training program; at The Living Room, a drop-in center for homeless women and children; and, at the Burbank Housing Organization community room in the Old Elm Village, Petaluma.
One of the trainings at Interlink called “Opportunity Knocks,” covered a history of PAI self advocacy, client driven programs, rights of mental health clients and how self-help advocacy can be used to find solutions to problems. Over 40 clients attended and took part in the discussion about issues and concerns.
The Interlink self advocacy group using existing PAI materials,
such as “Talking with your doctor,” worked to create a Passport to Wellness brochure. The brochure was created from a client’s
perspective. It is a one page brochure-like guide to identifying components for
becoming and staying “well”. The group
presented the brochure at a forum at the
Peer Self Advocacy: Goal 1 Objective B
PAI Staff: Linda Kehoe
Grant/Funding
Source(s):
Creekside Self Advocacy Group Activities
Two members of the Creekside Self
Advocacy group in
Self-Advocacy
Groups in
As a result of the self advocacy skills and rights training
received through participation in the
Peer Self Advocacy: Goal
1 Objective B
PAI Staff: Mark Olberg
Grant/Funding Source: PAIMI
A member of the self advocacy group at
Peer Self Advocacy: Goal
1 Objective B
PAI Staff: Debi Davis and Amy Breckenridge
Grant/Funding Source: PAIMI
The
The CMP Goals Committee, which consists of 7
The committee is working to increase participation by the project’s
collaborating organizations, California People First and the California Network
of Mental Health Clients, to help plan and organize the annual Remembrance
Ceremonies that are held throughout the state in September. In addition, we are planning fundraising
events, such as a soccer tournament in the
Cemetery
Restoration
The Team recommended that there be a wheelchair accessible pathway
from the parking to the monument at the
Peer-Self Advocacy: Goal 2, Objective A
PAI Staff: Karyn Farr, Alicia Mendoza, David Solis, Sheryl Bradford, Gabby Poblete-Morales, Martha Cook, Yvonne McGough, Senobia Pichardo, Marinda Reed, Daniel Meadows
Grant/Funding
Source(s): PAIMI, PADD